Today I saw my first carer at 2pm. A hugely overweight and smelly woman who tried to tell me someone had knocked at ten this morning. I have been up and alert since 8am and no one knocked. I don't know how much longer I will be here to be honest.
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Originally posted by matthew55 View PostToday I saw my first carer at 2pm. A hugely overweight and smelly woman who tried to tell me someone had knocked at ten this morning. I have been up and alert since 8am and no one knocked. I don't know how much longer I will be here to be honest.Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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See what happens tomorrow.How often each day should carer call.2pm for first call of day sounds late especially if you need help to wash and dress.
Do you have a key safe?So if carer knocks and no answer they can gain access.
Or maybe they could put a note through your door if they couldnβt gain access.
Could they ring to say they are at the door?
You could have been on the floor for 4 hours with no help arriving..really not good enough.
Hope things get better with the carers ..if not as Linda said COMPLAIN as you are vulnerable.
My kids bought us a ring doorbell so I can see on camera who has been to my front door.
Best wishes
Mary
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matthew55 Oh good.
From what I've learned in dealing with care providers: Document everything, have a clear idea of the outcome you want and Karen can take notes ππ Let them do the talking at first, see what they have to say...
Best of luck, be politely firm, be strong πͺ πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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