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    Afternoon out

    We’re in ‘The Friends Meeting House’ in Settle for Steve and friends band practice. I was fed up yesterday because not going out enough but today is another day. Despite the miserable weather I’m glad to be out, good company and nice music, Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    #2
    Good for you Lynne 👍👍 Enjoy 😘
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Thanks Ellie xx
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

      Comment


        #4
        Lynne K sounds like a good time...👍🏻😘
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          Yes thanks Linda xx
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

          Comment


            #6
            Sounds absolutely wonderful Lynne, take advantage of the good company and music before the weather gets really bad later tonight.

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              #7
              Yes Bri’ I was watching the weather last night carefully. It’s overcast, a bit windy and raining intermittently, xx
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

              Comment


                #8
                It does you so good Lynne to have a change of scene. We've managed to get to the Lake District for a little break, just waiting for the snow to arrive! X

                Comment


                  #9
                  Thanks Olivia. I hope that you both had a lovely time in ‘the lakes.’ One of our favourite places xx
                  ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                  I'm staying positive and taking each day as it comes.

                  Comment


                    #10
                    so pleased for you enjoy x

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                      #11
                      I think that my fed up day yesterday and today I wasn’t as bright as usual was because I haven’t had enough light on my eyeballs. So I asked Steve to get my light box out. I’m usually upbeat no matter what and have only ever been a little downcast in winter months. That’s why I bought a light box a few years ago, Lynne
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                      I'm staying positive and taking each day as it comes.

                      Comment


                        #12
                        That's interesting Lynne K the light box obviously makes a noticeable difference to your mood.

                        I take vitamin D3 supplements year round, supposedly very good for regulating mood. xx
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                          #13
                          I don’t know about the difference in vitamin D3 Ellie. We’ve got vitamin D but I didn’t read the box so might be D3 or not. X
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

                          Comment


                            #14
                            I take vitamin D3 because that’s the form of D produced by the body when the skin is exposed to sunlight. xx
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            Comment


                              #15
                              Originally posted by Ellie View Post
                              That's interesting Lynne K the light box obviously makes a noticeable difference to your mood.

                              I take vitamin D3 supplements year round, supposedly very good for regulating mood. xx
                              I checked the box on our vitamin D. It is D3 1000 IU xx
                              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                              I'm staying positive and taking each day as it comes.

                              Comment

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