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    Unclean unclean

    I feel like I have leprosy with bits falling off every day. πŸ€”πŸ€—πŸ˜πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Except that leprosy is curable now; maybe the bell ringers ought to walk in front of us 😩 xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Dry skin Mathew? If so you need moisturiser xx
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

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        #4
        Bits are falling off? Do tell?
        xxxx
        when i can think of something profound i will update this.

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          #5
          My face mostly πŸ˜πŸ€—πŸ˜β€οΈxx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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