I feel like I have leprosy with bits falling off every day. π€π€ππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Except that leprosy is curable now; maybe the bell ringers ought to walk in front of us π© xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Dry skin Mathew? If so you need moisturiser xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Bits are falling off? Do tell?
xxxxwhen i can think of something profound i will update this.Comment
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My face mostly ππ€πβ€οΈxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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