I don't have know if it's the weather or just another stage but I find some things impossible to do yet if I wait for a while I can do it. Things like turning a key or operating my pump. Happy Days. πποΈππ€xx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
I know what you mean Matthew. I struggle with doing lots of things but sometimes more than others. π€ I have figured out that they function slightly better when theyβre warm.π -
Stephen is the same. Some days are definitely better than others and I've never figured out why. πwhen i can think of something profound i will update this.Comment
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Yes my fingers get so cold in this weather, and this definitely doesn't help. But also if I find I am tired, or have tried to use my hands too much, they become more useless for a while. xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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