The simple addition of two grab bars has utterly changed the way I get up and turn over in bed. Who'd have thought it? 😴💤🛏️😜xx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
Sounds good matthew55 👍🏻Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified. -
Good news Matthew. We're find small even tiny changes can make a huge difference, both in my deterioration and in also in aids. Always running, metaphorically, to keep up with my changes.
Great to get a good night's sleep. Glad your grab bars have helped so much 🤗😁xxComment
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Smashing Mathew xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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I think i need these Matthew. What type are they? Might ask my ot for some xDiagnosed May 2021 bulbar onset als.Comment
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Mine were ordered by my physiotherapist. I have no idea what they're called sorry.Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Hello Shelly 21 - Albert has two of these and this is what it says on the sticker "Elland Bedlever" only suitable for profile bed.
He uses both quite a lot now and they came via the OT - only thing is once a month when the mattress is turned they both get in way they make it very difficult, but hey ho
SueHusband Albert diagnosed PMA Feb 21Comment
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