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    Little things

    The simple addition of two grab bars has utterly changed the way I get up and turn over in bed. Who'd have thought it? 😴💤🛏️😜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    #2
    Sounds good matthew55 👍🏻
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #3
      Good news Matthew. We're find small even tiny changes can make a huge difference, both in my deterioration and in also in aids. Always running, metaphorically, to keep up with my changes.
      Great to get a good night's sleep. Glad your grab bars have helped so much 🤗😁xx

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        #4
        Smashing Mathew xx
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

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          #5
          I think i need these Matthew. What type are they? Might ask my ot for some x
          Diagnosed May 2021 bulbar onset als.

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            #6
            Mine were ordered by my physiotherapist. I have no idea what they're called sorry.
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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              #7
              Hello Shelly 21 - Albert has two of these and this is what it says on the sticker "Elland Bedlever" only suitable for profile bed.

              He uses both quite a lot now and they came via the OT - only thing is once a month when the mattress is turned they both get in way they make it very difficult, but hey ho

              Sue
              Husband Albert diagnosed PMA Feb 21

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