When I actually get a carer he's dyslexic and I use writing to communicate! It's not a joke. ππππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Oh no!Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning! -
Use text to speech?
One of my carers is dyslexic and I often read out to her.
When you say you "finally got a carer", does that mean he's a PA π€π€π€πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Sadly no still waitingBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Dang it, thought your luck had changed... π€π€βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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well you certainly get plenty of variations on caring. i give up on them i think they are bad for my health.
xxxxxxxxxxwhen i can think of something profound i will update this.Comment
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