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It could only happen to me

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    It could only happen to me

    When I actually get a carer he's dyslexic and I use writing to communicate! It's not a joke. πŸ‘€πŸ˜πŸ˜†πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Oh no!
    Diagnosed July 2020, ALS bulbar onset.

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      #3
      Use text to speech?

      One of my carers is dyslexic and I often read out to her.

      When you say you "finally got a carer", does that mean he's a PA πŸ€”πŸ€žπŸ€žπŸ˜˜
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Sadly no still waiting
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Dang it, thought your luck had changed... πŸ€—πŸ€—
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            well you certainly get plenty of variations on caring. i give up on them i think they are bad for my health.
            xxxxxxxxxx
            when i can think of something profound i will update this.

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