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Second question sorry re going to toilet

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    Second question sorry re going to toilet

    Hello again

    This Friday my wife has an urgent eye appointment and will be gone for over 4 hours. We have been unable to arrange a carer and so the plan is for me to be in bed with pads.
    Usually my wife gets me in and out of bed so I can walk a few steps to the toilet. MY problem is I cannot seem to urinate lying down? Does anyone else have this problem.Also do pads leak?
    We have been referred for a conveen but will I be able to use it> Do guys get used to urinating lying down

    Thanks

    Steve

    #2
    Well I opted for a catheter. Not ideal if you have an active sex life. There is a condom version but I'm no expert. As for peeing lying down I fill a 2 litre bag every night! 🤥🙄😁🤣xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      I don’t know, but imagine that the inability to pee while conscious and lying down would be due to ‘learned behaviour’, ie. a psychological problem rather than physical inability. I truly hope you manage to get through the ordeal.
      Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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        #4
        I think it might be learned behaviour.

        I had a fall at home a few weeks ago and my wife could not get me up. We waited four hourd for an ambulance crew. I was bursting but laying on floor I could not usd urine bottle. Perhaps it is something you learn to do over time Thanks forreply

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          #5
          Originally posted by sunset709 View Post
          We have been referred for a conveen but will I be able to use it> Do guys get used to urinating lying down
          Mind over matter Steve - if you need to go, visualise yourself standing up 😏

          Practice with the Conveen before the day of the appointment, it can take a few goes to get it on securely. xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Thanks

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              #7
              sunset709
              Is it worth ringing your district nurse team to see if they can access a convene quicker for you?

              Do you have a palliative care team or maybe district nurse team that can access an urgent carer for you via a local carers association?

              Its a stressful situation for you to anticipate..

              A pad and waterproof sheet? pull up incontinence pads for men?available via Amazon,Age Uk.Boots etc I have a male friend who said the pull ups pants are better than pads provided by nhs…personal preference I guess.

              Hope you get something sorted
              Best wishes
              Mary

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                #8
                sunset709
                Have you got a lifeline and a key safe?Just back up in case you fall( worse scenario)
                I really am a fan of lifeline systems as I worked in a hospital and it was shocking how many people were on the floor unable to summons help after a fall.
                Mary

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                  #9
                  WE may try pants thanks
                  We tried Community Team know one available
                  We have key safe and Community Alarm
                  Thanks for reply

                  Comment


                    #10
                    Have you a urine bottle?

                    Is your weight the problem? The professionals will have an answer but as always after the event.
                    Copyright Graham

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                      #11
                      hi look i dont know about peeing if you are on your back but yeah i reckon its the fear of wetting the bed that probably causes a hang up. id just like to say that we do have condom catheter for my husband and when we really dont feel like using them we use adult nappies which are like pull on pants. they last over night and he pees for england so really they are worth having as back up. you can get them in the supermarkets and chemists. i can recommend them because come winter washing bedding it a real pain.
                      when i can think of something profound i will update this.

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                        #12
                        Hi Steve

                        when I am in bed I use a bottle which has a long tube attached, I think it is something that lorry drivers use. You can get them from Amazon. I’d post a link if I knew how to, but search on Amazon for ‘YUMSUM men’s male bed urinal potty P bottle’ and you’ll see what I mean.

                        I also have a problem starting to pee, you just have to be patient.

                        When I go out I use a convene.

                        Andy
                        Sporadic MND/ALS - Limb onset - Diagnosed May 2016
                        night time NIPPY, cough assist, PEG


                        Today is the tomorrow I feared yesterday

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                          #13
                          Thanks for all your comments and advice

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