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    Toileting

    Shortly we will be using the ceiling hoist to the commode/shower chair but I now wonder how to deal with the showering and toileting issue, we have a sling that means it can be kept on whilst the commode is over the toilet,

    I won’t be taking the sling off as I won’t be able to get it back on whilst he’s on the chair so Albert will have to shower/toilet with it on – I see that as ok, apart from it being a constant chore to dry it, BUT, the problem I can foresee is cleaning after the toilet, his arms are failing now and it's not going to be long until he can’t clean himself,

    Is my only option getting him back to the hoist and onto the bed and cleaning him there – I can’t get my head round how else to do it, as per the norm he won’t talk about it,

    Any tips? thanks

    Sue
    Husband Albert diagnosed PMA Feb 21

    #2
    Right I have now taken this further!! - A Bio Bidet, which people rave about, is suitable only for skin contact, ie bums on seats, so not suitable for a commode chair, BUT, I have been in touch with the manufacturers who inform me that if we buy some kind of mesh commode chair they attach a brass fitment to the underside which in turn contacts the seat to think its being sat on..............kidology or what,

    This might be a goer
    Husband Albert diagnosed PMA Feb 21

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      #3
      The wonderful, interesting and weird world of disability. This is why I'm happy to have mine. 😉🤔😜😍xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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        #4
        Suefromwakey
        Hi Sue,we had trouble getting a nhs shower chair to go over bio bidet chair .We found that the shower seat with mesh seat we found on the internet does not fit all toilet shapes.
        We ended up with a shower padded chair from chiltern invadex at Banbury.This company came out and measured it up.( MND association helped fund it).

        The problem is the bio bidet seat doesn’t fit all styles of toilets.We bought copper tape from b and q and my husband managed to work out where on the bio bidet Seat to fix the copper tape to override the sensors so it feels like somebody is Sat on it.

        Hope it works to solve the problem.I now can go on shower chair over the bio bidet( but have help to pull down trousers and undies first)It saves another transfer .

        Best wishes
        Maryx

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          #5
          When my adaptions get done (long wait) I’ll have a Closomat wash and dry loo. The shower wheelchair chosen by the Council OT in consultation with the woman from Closomat who came together) will go over the loo. But it’s the type of wheelchair that doesn’t tilt back as they are too big for my wet-room. I’ll get a device that I just have to wave my hand over to operate it and a remote that Steve can use from a discrete distance xx
          Last edited by Lynne K; 3 December 2021, 14:50.
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

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            #6
            Suefromwakey I don't know how helpful this is but my son who is T4 paraplegic following an accident lives in Thailand where all their loos have a small hose attached to the wall nearby to "clean up" afterwards over the toilet. He raves about them. If you google "Muslim toilets" you will find loads of such devices for sale.
            Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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              #7
              I did notice those hoses in the bathrooms when I spent a brief period working in the Middle East.
              Never had the nerve to try them although in my present condition I can see the appeal.
              Hi, I'm Eddie.
              Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
              Still walking and talking, and wondering what the future will bring.

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                #8
                Originally posted by WheelsOfSteel View Post
                I did notice those hoses in the bathrooms when I spent a brief period working in the Middle East.
                Never had the nerve to try them although in my present condition I can see the appeal.
                It's going to take so long for our bathroom conversion I'm thinking of getting one myself. Though it will require a plumber...
                Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                  #9
                  A quick Google does indeed find them, and the term for them is "shattaff" (I kid you not)
                  Hi, I'm Eddie.
                  Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                  Still walking and talking, and wondering what the future will bring.

                  Comment


                    #10
                    Hilarious Eddie - my cheaper option would be garden hose and a lot less faffing,
                    Husband Albert diagnosed PMA Feb 21

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                      #11
                      Originally posted by Suefromwakey View Post
                      Hilarious Eddie - my cheaper option would be garden hose and a lot less faffing,
                      Or a power washer... 😉😘
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                        #12
                        Suefromwakey Ellie, you are cruel women
                        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                          #13
                          Bio bidet has warm water. Wouldn't fancy a hose and cold water. 😳
                          when i can think of something profound i will update this.

                          Comment


                            #14
                            Originally posted by denise View Post
                            Wouldn't fancy a hose and cold water.
                            Betcha wouldn't mind doing it to others though 😏😍😍😘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            Comment


                              #15
                              My Bio Bidet delivers hot but second use delivers cold. 🔥❄️😉🤣xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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