Yes Ellie I was about 42/43 I think then, I donβt look like that now π€¦πΌββοΈπ
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Janette x -
Oh janette
what lovely news. I am so pleased for you both.
Lots of hugs and kisses
Xxxxwhen i can think of something profound i will update this.Comment
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Thank you Denise β€οΈ XxJanette xComment
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It's a fab photo Janette: an insight into the real you, the girl with the patio pub πππππOriginally posted by Nettie View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Yes Ellie the patio pub I canβt get into anymore lol π xxJanette xComment
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Outdoor table service Janette, I can see Phil balancing a tray of drinks in one hand, collecting tips in the other ππ If skiers can sit outdoors halfway up a mountain, then The Ramp & Duck pub can have outdoor tables, even in February π€πππOriginally posted by Nettie View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Congratulations Janette xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Thanks Lynne β€οΈ XxJanette xComment
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Nettie
That is wonderful news. Planning on marrying Hubs next year too, as the 15 year old handfasting is not legal.
I didn't know you could get married at home, legally. Are you in England?
Have a fab time.
Waiting for lowered door still, so hubs still house bound.
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Hi Dee, thank you β€οΈ Aww are you? Must be something in the air π
I didnβt know about it at first but because Iβm classed as housebound you can, you just have to have forms signed by your doctor to confirm your housebound. Yes Iβm in England love Janette xJanette xComment
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Does Thomas know?? πππOriginally posted by DeeH View Post
That's wonderful news Donna, thanks for sharing. Huge congrats. πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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How excellent - congratulations!
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He was a bit shockedOriginally posted by Ellie View Post
I just need to sort something, it is only for legal reasons.
The handfasting was beautiful. In Peru in 2005.Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Wishing you all the happiness in the Universe ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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