If you are thinking of ending early by simply not using your Peg be aware that after a couple of days certain levels will drop dramatically. Thereafter any blood test, for any reason, will result in you being dragged to hospital where the majority ethos is 'do no harm', so even if you have a DNR they will try and keep you alive. π€ππ€πxx
Announcement
Collapse
No announcement yet.
Note of caution
Collapse
X
-
An advance decision (living will) let's people know treatments
ββββββyou will refuse. Probably why we should all make sure we have this written down signed and witnessed.
On my 'to do' list ππ
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
Comment
-
Originally posted by matthew55 View PostIf you are thinking of ending early by simply not using your Peg be aware that after a couple of days certain levels will drop dramatically. Thereafter any blood test, for any reason, will result in you being dragged to hospital
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
- Likes 1
Comment
-
Originally posted by Suefromwakey View PostEllie I absolutely get that and that's exactly where we will be as Albert is still saying he doesn't want a peg fittedβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
- Likes 1
Comment
Comment