We are all trying to cope with this demonic disease, and it's difficult enough without tension created here. This is supposed to be a safe place. Yes or No? 🤔😁🙄🙏xx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
Think I must have missed something?
Mary -
Post RemovedBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Post RemovedHi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning all
I have removed the posts which went against the forum guidelines of being kind to each other. If a member posts something that you are not happy with then please use the flag button to bring it to our attention or send us a private message. Everyone should feel welcome on the forum. You don't all have to be friends but you are asked to be respectful to each other.
Best Wishes
Rachel
MND ConnectMND Connect
Contact us on 0808 802 6262 or at [email protected]Comment
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It is hard though when members deliberately insult other members. I've seen some strong accusations and downright playground name calling.Diagnosed May 2021 bulbar onset als.Comment
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ApologiesHi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Please do flag any posts that you see like this. It can be hard to keep up with all of the posts and different threads so we are always grateful to any forum members who flag things that they think are inappropriate.Originally posted by shelly21 View PostMND Connect
Contact us on 0808 802 6262 or at [email protected]Comment
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