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Using thickener in fluids

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    #16
    Well I have dry days when I use artificial saliva or xyilmelts. Then wet days when I use Bromide and tissues. It's a balancing act. 😁😜😘😍xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #17
      Mary C I did try thickener because I was choking a lot on drinks, but didn't really like it. So I don't bother now, but just concentrate when drinking (eg not leaning back and not trying to talk at same time). If I do this I generally find I'm okay, but find it easier and safer to put lots of water down my tube so I don't feel pressurised to drink when I don't want to. I can just take sips. x
      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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