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  • matthew55
    replied
    Wythenshawe comes a close second. 👌👐😁😍xx

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  • Lynne K
    replied
    Thanks Mathew. Wythenshaw Breathing Specialists lead doctor is the person that makes the decision about my suprapubic catheter and how they do the PEG. Xx

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  • matthew55
    replied
    You're in the best hands in the world at Salford. 🌍👐❤️😍xx

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  • Lynne K
    replied
    Thanks Heather xx

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  • Lynne K
    replied
    Thanks Mary. I hope that they scan my stomach so that they know that it’s safe to a PEG without open surgery. That’s the big risk xx

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  • Mary C
    replied
    Lynne K
    When I went for the PEG last June it didn’t go ahead as I had polyps in stomach.So I had an MRI and a RIG procedure …same outcome but different procedure.
    Hope all goes well at your pre op assessment,
    Best wishes
    Mary

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  • Heather R
    replied
    Lynne K that sounds complicated, hope your January appointment brings good news on that score. xx

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  • Lynne K
    replied
    Thanks Mary but I don’t have a date yet for the procedures. It’s just the pre-op with the lead doctor of the breathing team to talk about the risk of a general anaesthetic in my situation. I was told by the urologist at Salford that I couldn’t have the simplest procedure because of the previous pelvic area operations that I’ve had. They are concerned about coming across tissues from for example my bowel being stuck to other organs making the operation potentially dangerous xx

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  • Mary C
    replied
    Hi Lynne
    glad your blood tests were ok and you have your date for supra pubic catheter and RIG.
    So for now you can just enjoy Christmas season.
    Best wishes
    Mary

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  • Lynne K
    replied
    Yea fingers crossed here Ellie xx

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  • Ellie
    replied
    Originally posted by Lynne K View Post
    the pre-op is for the suprapubic catheter and a RIG
    A twofer 👍👍 That won't be long coming around Lynne. xx

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  • Lynne K
    replied
    Thanks Ellie and Linda. Yes Ellie, the pre-op is for the suprapubic catheter and a RIG xx

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  • LindaB
    replied
    Lynne K that's such good news 😘😘

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  • Ellie
    replied
    That's good news Lynne K

    Originally posted by Lynne K View Post
    My neurologist also confirmed that the appointment that I’ve been given for Wythenshaw in January is for a pre-op discussion
    When you say "pre-op", is that for the suprapubic catheter? xx

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  • Lynne K
    started a topic Clinic update

    Clinic update

    I went to my three monthly clinic appointment this afternoon. The blood taken from my ear to check if my stats oxygen and carbon dioxide (re breathing strength) showed that everything is ok. My weight was up but I was wearing more clothes than last time including my coat. Breath stacking must work .

    My neurologist also confirmed that the appointment that I’ve been given for Wythenshaw in January is for a pre-op discussion and maybe tests, so all good. Xx
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