Consistently of care. Yesterday I heard a knock on my front door at 0715, as I was still in bed I did not answer. Today I got up at 0500 just in case, and so far nothing. The irony is that as I need more care I get less. π‘π€¬π§π€―xx
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Originally posted by matthew55 View PostConsistently of care. Yesterday I heard a knock on my front door at 0715, as I was still in bed I did not answer. Today I got up at 0500 just in case, and so far nothing. The irony is that as I need more care I get less. π‘π€¬π§π€―xxDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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Originally posted by matthew55 View PostConsistently of care. Yesterday I heard a knock on my front door at 0715, as I was still in bed I did not answer. Today I got up at 0500 just in case, and so far nothing. The irony is that as I need more care I get less. π‘π€¬π§π€―xxInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Hi Matthew, not sure what you mean that keysafe is for Age Uk..?
If you inform the care agency providing carers they should pass keysafe number to carers to access your home.
Hope they turned up this morning.
Can you email the agency to say your care needs have increased and they should assess if the duration of the call needs increasing.
Best wishes
Mary
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matthew55 you're entitled to give your key safe number to anyone you choose to. That includes the agency - that's the main reason for having it. Age Concern may have fitted the key safe however it's yours. Emergency services also need to be able to access or else they will break your door down.
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Originally posted by matthew55 View PostFirstly age concern will not give the number to anyone. Second there is no email address for the agency. I have 5 more days to wait for my meeting.Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Originally posted by matthew55 View PostI've checked online and I have no idea what the code is.
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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