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  • Derbyram21
    replied
    Originally posted by Lynne K View Post
    Derbyram21 I hope that the covid you’ve got goes away soon and no after effects xx
    Thank you ❀️ x

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  • Derbyram21
    replied
    Originally posted by Ellie View Post

    Hmmm, ask if steroid and/or nerve blocking injections might be suitable for your joint pain. They worked a treat for me, no opioids needed πŸ‘πŸ‘πŸ˜˜
    Now there's a thought ! My mum had those !

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  • Lynne K
    replied
    Derbyram21 I hope that the covid you’ve got goes away soon and no after effects xx

    Leave a comment:


  • Ellie
    replied
    Originally posted by Derbyram21 View Post
    My joints hurt before the stick to be honest so I am working out what best to take opiates suppress breathing as we know so they are reluctant to prescribe. They are talking about Baclofen as some of it may be muscle related.
    Hmmm, ask if steroid and/or nerve blocking injections might be suitable for your joint pain. They worked a treat for me, no opioids needed πŸ‘πŸ‘πŸ˜˜

    Leave a comment:


  • Derbyram21
    replied
    Originally posted by Derbyram21 View Post

    Hi Ellie I have got oximeter which I have been using & and your right about the NIV it's what the MND Nurse said when she found out. I have seen physio who came when I injured my ankle which is now getting better thank you . My joints hurt before the stick to be honest so I am working out what best to take opiates suppress breathing as we know so they are reluctant to prescribe. They are talking about Baclofen as some of it may be muscle related. I've seen Orthotics who have given me foot lifters and some ankle supports with shoes ,when I wear them I walk like iron man πŸ˜ƒ I know I can come on here for advice and support and it's great !!! Thank you all of you ❀️ x
    P S Wife & Stepdaughter don't have it .
    My other Daughter had it last year .

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  • Derbyram21
    replied
    Originally posted by Heather R View Post
    Derbyram21 That's tough having covid as well. Hope you soon improve and get on top of the pain issue. x
    Thank you Heather x

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  • Derbyram21
    replied
    Originally posted by Ellie View Post
    Sorry to hear you have Covid Derbyram21 Does your wife have it too?


    No harm in using NIV for a while during the day to give your breathing muscles a helping hand when they most need it. If you have a pulse oximeter monitor, keep an eye on your Sats, especially as you have the added complication of COPD, and I presume your GP knows you've Covid.

    Re your joint pain: You're not going to like what I'm going to say, but... 😏 It might just be the case that, by using a stick, you're changing the dynamics of your gait and putting undue pressure on your joints, causing pain. I suggest being assessed by a Physiotherapist.

    Did your ankle heal fully and did you get an orthotic?

    Wishing you a full Covid recovery.

    Love Ellie.
    Hi Ellie I have got oximeter which I have been using & and your right about the NIV it's what the MND Nurse said when she found out. I have seen physio who came when I injured my ankle which is now getting better thank you . My joints hurt before the stick to be honest so I am working out what best to take opiates suppress breathing as we know so they are reluctant to prescribe. They are talking about Baclofen as some of it may be muscle related. I've seen Orthotics who have given me foot lifters and some ankle supports with shoes ,when I wear them I walk like iron man πŸ˜ƒ I know I can come on here for advice and support and it's great !!! Thank you all of you ❀️ x

    Leave a comment:


  • Heather R
    replied
    Derbyram21 That's tough having covid as well. Hope you soon improve and get on top of the pain issue. x

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  • Ellie
    replied
    Sorry to hear you have Covid Derbyram21 Does your wife have it too?

    Originally posted by Derbyram21 View Post
    Breathing has been ok wheezing but inhaler is helping. Used NiV to help when sleeping but that's the norm really.
    No harm in using NIV for a while during the day to give your breathing muscles a helping hand when they most need it. If you have a pulse oximeter monitor, keep an eye on your Sats, especially as you have the added complication of COPD, and I presume your GP knows you've Covid.

    Re your joint pain: You're not going to like what I'm going to say, but... 😏 It might just be the case that, by using a stick, you're changing the dynamics of your gait and putting undue pressure on your joints, causing pain. I suggest being assessed by a Physiotherapist.

    Did your ankle heal fully and did you get an orthotic?

    Wishing you a full Covid recovery.

    Love Ellie.

    Leave a comment:


  • Derbyram21
    replied
    Originally posted by LindaB View Post
    Sorry to hear about covid Derbyram21 how are you managing the symptoms with breathing etc...it's my greatest fear at the moment
    Thanks for the update and get well from covid soonπŸ™
    Hi Linda
    Breathing has been ok wheezing but inhaler is helping. Used NiV to help when sleeping but that's the norm really. If you're double jabbed etc it's not as bad. Daughter works at Hospital and has said most coming in are unvaccinated.
    x

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  • matthew55
    replied
    Still waiting for my dose of Covoid πŸ˜‰πŸ˜πŸ˜‚πŸ˜Žxx

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  • LindaB
    replied
    Sorry to hear about covid Derbyram21 how are you managing the symptoms with breathing etc...it's my greatest fear at the moment
    Thanks for the update and get well from covid soonπŸ™

    Leave a comment:


  • Derbyram21
    started a topic Just to add to the mix COVID

    Just to add to the mix COVID

    So slowly coming to terms with everything & now I have COVID luckily had both jabs and the irony not lost that we were both discussing the Booster jab appointment's.
    NIV at night is going well. Had another Consultation appointment which again went well ( fully aware this will not always be the case) My main problems at the moment are joint pain ( it bloomin hurts) mobility ( got a stick) I am lucky as I know a lot of you are further down the road but your all an inspiration . ! Just an update keep on keeping on all of you even when our days are a little darker.
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