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Peg feed advice please

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    #61
    Hi Will,

    I think you'll be OK at that weight to have a feeding tube fitted!

    If morbidly obese people can successfully have a PEG procedure, I'm sure your belly won't preclude you from having it

    You may be stuck with a long tube and not be able to have a low profile button if you need an internal length > 5cm, but that's about it.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #62
      Originally posted by Ellie View Post
      Hi Will,

      You may be stuck with a long tube and not be able to have a low profile button if you need an internal length > 5cm, but that's about it.

      Love Ellie.
      For the first time ever, you're wrong Ellie;

      Micky only goes up to 5cm but there are other makes that make them longer. They are not so well made as regard to there fittings and shape but they are available.

      Love TC
      TB once said that "The forum is still the best source for friendship and information."

      It will only remain so if new people post and keep us updated on things that work or don't work and tips.

      Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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        #63
        thanks people. I just can't shift any weight. which brings me to another question if you don't mind. I thought I saw on here that I could trousers with a Velcro flap at the front for using a bottle easier. any clues? my illness is beginning to bite now. legs went ages ago but arms are now very weak. bed and hoist ordered . bit early but I best get them sorted. my downstairs room is built and being decorated. I have asked for a bar in there

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          #64
          Hi Iron Will,

          You might find some useful information about trousers for gentlemen on the 'Clothing to make life easier' thread - the Able2Wear website is recommended by John (Jay Tee) on that thread:-

          http://forum.mndassociation.org/show...light=Trousers

          https://www.able2wear.co.uk/wheelcha...-trousers.html

          Hope all goes well with kitting out your new downstairs pad. Great that you want it to include a bar! (all round to yours to celebrate the grand opening - what time is happy hour?! )

          Best wishes
          Kayleigh x

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