Yesterday I could move the dial on my pump with my fingers, today I couldn't. After trying all sorts of contortions I had a eureka moment and got my pliers. Bingo!!!! It ain't over until the physically challenged lady sings init? ππ€ππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Thatβs great Mathew xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
Where there's a will.....& all thatππ»ππ»ππ»πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Woo hoo. I'm the same i keep at it, we are a hardy bunch.Diagnosed May 2021 bulbar onset als.Comment
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It gives you a chance to be creative. I think you have shown lots of creativity in this forum Matthew, how have you made use of that in your life?? xxDiagnosed July 2020, ALS bulbar onset.Comment
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Back in time I was an art student but being young and stupid I did other things. Hey Ho! π¨π πβ€οΈxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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