Yesterday I could move the dial on my pump with my fingers, today I couldn't. After trying all sorts of contortions I had a eureka moment and got my pliers. Bingo!!!! It ain't over until the physically challenged lady sings init? ππ€ππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Thatβs great Mathew xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
Where there's a will.....& all thatππ»ππ»ππ»πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Woo hoo. I'm the same i keep at it, we are a hardy bunch.Diagnosed May 2021 bulbar onset als.Comment
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It gives you a chance to be creative. I think you have shown lots of creativity in this forum Matthew, how have you made use of that in your life?? xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Back in time I was an art student but being young and stupid I did other things. Hey Ho! π¨π πβ€οΈxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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