Originally posted by Ellie
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Moving from indwelling to suprapubic catheter
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Originally posted by DeeH View Post
Thanks DeeFoxes Never Quit π
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I asked on behalf of my husband for ther cateract procedure, this question. He can be semi reclined for that, unsure for other procedures
Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.
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Originally posted by Rosemary6NT View PostThis was a query for the peg procedure
Yes, it is possible to have the PEG procedure in a 'semi-recumbent' position but it's not standard practice, so some people might have to have it done in a different hospital or have a specialist surgeon do it in their own hospital, which may entail a wait.
I've personally known of two people who had the procedure like that, and used BiPAP with a nasal mask. xx
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Originally posted by Ellie View PostI don't know if that query was answered for you or not Rosemary but if it wasn't...
Yes, it is possible to have the PEG procedure in a 'semi-recumbent' position but it's not standard practice, so some people might have to have it done in a different hospital or have a specialist surgeon do it in their own hospital, which may entail a wait.
I've personally known of two people who had the procedure like that, and used BiPAP with a nasal mask. xxDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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Originally posted by Rosemary6NT View PostIβm just wondering if there are the same considerations when having a suprapubic catheter inserted as that is next on my list.
As you said, your nurse will clarify it for you. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Lcfcno1fan Hope tomorrow's procedure goes smoothly James and that you recover quickly π€π€ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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Originally posted by Ellie View PostLcfcno1fan Hope tomorrow's procedure goes smoothly James and that you recover quickly π€π€ππFoxes Never Quit π
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Lcfcno1fan I echo that...hope all goes well..πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Lcfcno1fan all the best for tomorrowDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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Originally posted by Lcfcno1fan View PostSo I was in for longer than expected as I bled more than normal but otherwise everything is okay
Take it easy and recover well ππ€
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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Lcfcno1fan best wishes for a speedy recoveryππ€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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