Moving from indwelling to suprapubic catheter

[LindaB]

Lcfcno1fan best wishes for a speedy recovery🙏🤗

[Ellie]

So I was in for longer than expected as I bled more than normal but otherwise everything is okay

Thanks for the update James 👍👍

Take it easy and recover well 😘🤗

[Lcfcno1fan]

Thanks everyone 🥰

So I was in for longer than expected as I bled more than normal but otherwise everything is okay 👍

[Rosemary6NT]

Lcfcno1fan all the best for tomorrow

[LindaB]

Lcfcno1fan I echo that...hope all goes well..🙏

[Lcfcno1fan]

Lcfcno1fan Hope tomorrow's procedure goes smoothly James and that you recover quickly 🤞🤞😘😘

Awwwww thanks Ellie 🥰😘🥰😘

[Ellie]

Lcfcno1fan Hope tomorrow's procedure goes smoothly James and that you recover quickly 🤞🤞😘😘

[Ellie]

I’m just wondering if there are the same considerations when having a suprapubic catheter inserted as that is next on my list.

I don't see why not Rosemary, it won't make a difference to how your bladder drains (unless they want to tilt the table head down 😏) and you should be able to use your BiPAP throughout the procedure.

As you said, your nurse will clarify it for you. xx

[Rosemary6NT]

I don't know if that query was answered for you or not Rosemary but if it wasn't...

Yes, it is possible to have the PEG procedure in a 'semi-recumbent' position but it's not standard practice, so some people might have to have it done in a different hospital or have a specialist surgeon do it in their own hospital, which may entail a wait.

I've personally known of two people who had the procedure like that, and used BiPAP with a nasal mask. xx

Thanks Ellie, I was lucky that Oxford could do the PEG procedure with me at 45 or so degrees. I’m just wondering if there are the same considerations when having a suprapubic catheter inserted as that is next on my list. I will ask my all-knowing MND specialist nurse.

[Ellie]

This was a query for the peg procedure

I don't know if that query was answered for you or not Rosemary but if it wasn't...

Yes, it is possible to have the PEG procedure in a 'semi-recumbent' position but it's not standard practice, so some people might have to have it done in a different hospital or have a specialist surgeon do it in their own hospital, which may entail a wait.

I've personally known of two people who had the procedure like that, and used BiPAP with a nasal mask. xx

[DeeH]

DeeH does the procedure require patient to lie flat and horizontal? This was a query for the peg procedure

Rosemary6NT that's a good question for other folk. I know there is a difference between PEG and RIG procedures.

I asked on behalf of my husband for ther cateract procedure, this question. He can be semi reclined for that, unsure for other procedures

[Lcfcno1fan]

Lcfcno1fan

I would recommend, the negativity of doctors is shocking to me still.

I guess some of them see it as non-essential if you have a Urethra catheter in good working order 🤷🏻♂️

Thanks Dee

[Lcfcno1fan]

DeeH does the procedure require patient to lie flat and horizontal? This was a query for the peg procedure

I would imagine you need to be flat?

[Lcfcno1fan]

Woohoo James 👍👍 I was wondering how this was progressing.

Is it being done with a local anaesthetic, epidural or the full general? xx

Epidural 👍👍

[Rosemary6NT]

DeeH does the procedure require patient to lie flat and horizontal? This was a query for the peg procedure