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    Christmas this year

    I very rarely had a happy Christmas so, for reasons too numerous to mention, it holds no special place in my life me. I appreciate for others the opposite is true. So I will be absent for long periods until it's all over. πŸ‘πŸ˜πŸ€—πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Originally posted by matthew55 View Post
    it holds no special place in my life
    You hold a special place in my life Matthew, genuinely, not me being mushy for the sake of it.

    I send you happy thoughts, hugs and kisses 😚😚😚
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Hi Matthew, hope you have a peaceful time.At least we won’t be wondering where you are now you have pre warned us..
      Best wishes
      Maryx

      Comment


        #4
        matthew55
        Forum Member
        matthew55 hope you won't be absent too long....we rely on your humour πŸŽ…πŸ€ΆπŸŒ²
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          Hi
          matthew55
          Forum Member
          matthew55 . Thank you for letting us know and I'm sorry Christmas is an ordeal for you. It's hard to escape it.

          It's still a week to go so do get in touch if you need the support of your forum friends at any time.

          Love and hugs to you xxπŸ˜˜πŸ€—

          Comment


            #6
            Hey Matthew I am sorry you are going through this. A lot of people are in the same situation. I didn't buy any cards this year and your address is in Portugal with everything else. I will be thinking of you over Christmas and every one else. Perhaps we should make a pact to raise a glass, even if it's an imaginary one, at the same time. A time that is supposed to be so happy for many has the opposite effect.

            Love and hugs
            😘
            when i can think of something profound i will update this.

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