Just had my booster jab. Will let you know if I have any problems. π
ππ€πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Just had seasonal flu and pneumonia. What fun.when i can think of something profound i will update this. -
Denise and Mathew good about your boosters. We had ours about a month ago xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Better late than never ππ
Stay safe xxβDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Still haven't had covid boosters. I've had to email local council. Looks like they can't do it at home. Seems to me the attitude is if you can't get out you can't catch it. I'm not impressed. So much for treating the vulnerable.
πΎwhen i can think of something profound i will update this.Comment
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denise that's ridiculous....speak to your GP practice manager?Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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I think the only person I haven't spoken to at the surgery is the cleaner. It looks like sort it myself or forget it. No one is available.when i can think of something profound i will update this.Comment
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Hi Denise all GP surgeries have a business manager.My advise is to ring and if the receptionist doesnβt know if vaccination is available in your home then the business manager will know the procedure.
Dont give in.
Best wishes
Mary xComment
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Finally got my booster todayπ
I will add I had to nag....via my hospice nurse & physio & friend all contacting the surgery. Practice nurse turned up at my place this morning unexpectedly...but hey ho...it's done.
Took panadol just in caseππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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That's terrible. Our Milton Keynes council is pleading with people on social media to come forward for boosters. You can just walk in off the street and get one.Originally posted by denise View PostDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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I think it's harder to get the booster jab in your own home.
GP's nurse gave me my booster on 22nd October, in the surgery carpark, didn't need to get out of the car, or I could have had it at home 2 weeks later, so I opted to go out. xxβDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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It makes me laugh that me, someone who wants to die, is now safe from Covoid. ππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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You're not 100% Covid-proof so you never know... πππOriginally posted by matthew55 View PostβDiagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Local government said too many waiting so they have given me email for NHS home visit team. Strange local gp surgery doesn't know there is one. It's a real mess.when i can think of something profound i will update this.Comment
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Denise, you can go to the NHS vaccine site and book boosters yourself at different places of your choosing xxOriginally posted by denise View Post
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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