Finally something is happening

[matthew55]

I have asked for for a mixed team and I don't know how many but I will always get the same ones. They are being PEG and Pump trained. They have other MND livers on their books. I can't wait. 📚😁😍😘xx

[Lynne K]

matthew55 thats great xx

[Deb]

So pleased for you Matthew. That's great news and fantastic that its given you a boost. Xxx 😘🥰🤗

[Mary C]

Hi Matthew, I really hope this new care arrangement works out for you.I hope they have agreed with you the tasks to be done and understand things change with MND .
4 calls a day of one hour duration is a good start.There will be a period of you getting to know the carers and give versa.
Lets Hope this gives you the support you need.
Make sure you get contact details for out of hours and normal day time hours to email/ text.
Really good news.
Best wishes
Mary x

[Ellie]

matthew55 I know you said it's small Care Agency but do the carers clock in and out via an App, so the company is alerted automatically of any 'no-shows'? xx

[Susie]

Fantastic news Matthew. 🤗😊xx

[Graham]

This is a similar experience to what I had. Care agencies struggle to find the staff to cope with caring for MND. It is complex care, particularly when non-verbal. Frustration on both sides occurs.

A part Direct Payments option is better to maintain consistency of care but the cost is management of the DP.

[matthew55]

I can only suck it and see although the manager I saw said that if I phone the out of hours number and don't say anything and hang up they will text or email me straight back. 👍😁🤩🤠xx

[Rosemary6NT]

Sounds promising Matthew, I hope it all goes well

[richard]

Excellent news Matthew

[denise]

this is sounding very positive matthew. the christmas fairy has been. xxxxxxxxxx

[Lynne K]

matthew55 what’s the name of your care agency Mathew please? I’m really struggling now so need help. Thanks, xx

[matthew55]

They are called Right at Home and are based in Loughton

[Lynne K]

matthew55 thanks, out of my area xx

[matthew55]

Maybe if you contact them they could recommend someone in your area?