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    Christmas presents

    Years ago I used to have a lot of things on my present list, usually difficult to find things. Then, I would not like my immediate family members to buy practical/necessary items. Now that I have been diagnosed with MND, all I want is practical items, and people's time to help me with things I can no longer do.
    My daughter now complains that I am only asking for practical stuff!
    This is the first year ever when I will be overjoyed with things to help me cope, and having time with my husband and daughter.
    I realise, I need to tell her things have changed, then she might understand.


    Well, i told her. She said, "that doesn't mean you can't have fun things". i agree. She suggested matching track suit trousers! i always wear these for dog walking!! Good idea eh? With her idea of funky, not sure she will want the same as me!
    Mum died with MND in 1979 โ€“ My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

    #2
    My biggest problem this year is opening presents. ๐ŸŽ๐Ÿ˜Ž๐Ÿ˜๐Ÿ˜˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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      #3
      My biggest disappointment was seeing a chocolate doll in my pillow case at the end of my bed....only to discover it was an actual doll...the loss of chocolate was devastating to my 5 yr old self๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ
      โ€‹โ€‹โ€‹โ€‹
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

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