Dry no more

matthew55

Forum Member

Join Date: May 2020

Posts: 5794
#1

Dry no more

26 December 2021, 11:03

I finally figured out how to use my xyilmelts. One at bedtime and another one around midnight. I have to wipe my mouth in morning. The tablets melt to practically nothing, and although it's getting very difficult to place them I plan to have my evening carer place it before they leave. No more dry mouth for me. 👄😁😊🤗xx0

Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx
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Lynne K

Forum Member

Join Date: Nov 2017

Posts: 2615
#2

26 December 2021, 11:43

matthew55 that’s good Mathew xx

ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

I'm staying positive and taking each day as it comes.
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Heather R

Forum Member

Join Date: Jul 2020

Posts: 1260
#3

27 December 2021, 09:41

Are those something you get on prescription Matthew?

Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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matthew55

Forum Member

Join Date: May 2020

Posts: 5794
#4

27 December 2021, 09:58

I wish. I have to buy them on amazon

Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx
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