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    NHS Covid Testing for Vulnerable

    I got a PCR testing kit and an explanation about the new pills for vulnerable people this morning. Anybody else got the same? Lynne x
    Lynne K
    Forum Member
    Last edited by Lynne K; 26 December 2021, 13:42.
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    #2
    A few people have Lynne, it was mentioned on a thread within the past few days. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    Comment


      #3
      Ellie
      Forum Member
      Ellie thanks Ellie. Sorry that I hadn’t noticed xx
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

      Comment


        #4
        No need to apologise
        Lynne K
        Forum Member
        Lynne K It was buried in a thread somewhere. At least people can see exactly what this thread is about 👍 xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #5
          Ellie
          Forum Member
          Ellie thanks again Ellie xx
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

          Comment


            #6
            We have the testing kit but no pills. I thought they'd arrive when a positive test was recorded.
            when i can think of something profound i will update this.

            Comment


              #7
              I've received an NHS letter telling me Id be eligible for a new corona virus treatment...also they're sending me a PCR test kit to keep at hand. 😎
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

              Comment


                #8
                Originally posted by denise View Post
                We have the testing kit but no pills. I thought they'd arrive when a positive test was recorded.
                I didn’t check the envelope as Steve opened it. I misunderstood him when he explained. I didn’t get pills after all. I’ll edit my first post. Thanks xx
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.

                Comment


                  #9
                  Originally posted by LindaB View Post
                  I've received an NHS letter telling me Id be eligible for a new corona virus treatment...also they're sending me a PCR test kit to keep at hand. 😎
                  That’s good Linda xx
                  ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                  I'm staying positive and taking each day as it comes.

                  Comment


                    #10
                    If I did get pills they are in the bin. 😂😁🤗😍xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                    Comment


                      #11
                      Originally posted by matthew55 View Post
                      If I did get pills they are in the bin.
                      I wouldn't expect anything less... 😉🤗😘

                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      Comment


                        #12
                        Originally posted by matthew55 View Post
                        If I did get pills they are in the bin. 😂😁🤗😍xx
                        How come? Xx
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                        I'm staying positive and taking each day as it comes.

                        Comment


                          #13
                          Because I welcome anything that ends my current situation. 🤗😘😍😘xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                          Comment


                            #14
                            matthew55
                            Forum Member
                            matthew55 I see, thanks xx
                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                            I'm staying positive and taking each day as it comes.

                            Comment


                              #15
                              Hello all. Myself , husband & son tested positive with PCR tests on Friday (great Christmas present!) I was called today by a doctor with the two options of the new ‘treatments’. The first was to go to a local hospital to have an infusion which would last a couple of hours and the second was a 5 day course of tablets. The doctor stated that the main positive results were shown with people who had not been vaccinated and they had been trialled before the omicron variant came in, so couldn’t say if they would make any difference! As all 3 of us, luckily, just have mild cold symptoms I declined both options and will just continue with paracetamol. I know I am lucky in that I don’t yet have any real issues with breathing.
                              hope you all had a good Christmas Day. Ours was quiet and stress free but I can’t wait to see the rest of my family when we are allowed back out!

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