I got a PCR testing kit and an explanation about the new pills for vulnerable people this morning. Anybody else got the same? Lynne x
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Last edited by Lynne K; 26 December 2021, 12:42.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
A few people have Lynne, it was mentioned on a thread within the past few days. xxโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Ellie thanks Ellie. Sorry that I hadnโt noticed xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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No need to apologise Lynne K It was buried in a thread somewhere. At least people can see exactly what this thread is about ๐ xxโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
โComment
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Ellie thanks again Ellie xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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We have the testing kit but no pills. I thought they'd arrive when a positive test was recorded.when i can think of something profound i will update this.Comment
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I've received an NHS letter telling me Id be eligible for a new corona virus treatment...also they're sending me a PCR test kit to keep at hand. ๐Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโComment
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I didnโt check the envelope as Steve opened it. I misunderstood him when he explained. I didnโt get pills after all. Iโll edit my first post. Thanks xxOriginally posted by denise View PostALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Thatโs good Linda xxOriginally posted by LindaB View PostALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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If I did get pills they are in the bin. ๐๐๐ค๐xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
โComment
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How come? XxOriginally posted by matthew55 View Post
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Because I welcome anything that ends my current situation. ๐ค๐๐๐xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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matthew55 I see, thanks xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Hello all. Myself , husband & son tested positive with PCR tests on Friday (great Christmas present!) I was called today by a doctor with the two options of the new โtreatmentsโ. The first was to go to a local hospital to have an infusion which would last a couple of hours and the second was a 5 day course of tablets. The doctor stated that the main positive results were shown with people who had not been vaccinated and they had been trialled before the omicron variant came in, so couldnโt say if they would make any difference! As all 3 of us, luckily, just have mild cold symptoms I declined both options and will just continue with paracetamol. I know I am lucky in that I donโt yet have any real issues with breathing.
hope you all had a good Christmas Day. Ours was quiet and stress free but I canโt wait to see the rest of my family when we are allowed back out!Comment
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