Care Advice

[Nettie]

Thanks everyone I’ve just put an update on much love Janette xx

[Doug Carpenter]

Thanks Ellie. I was ok, but it meant my live in carer could go ouut only for a sort break.

This carer has been late before and usually has a plausible excuse. So I hadn't rung the office before they rang me to check. I'm impressed they took such decisive action, which was my reason for posting.

Doug x

[Ellie]

A carer i don't see very often was due to sit with me for four hours yesterday afternoon. She didn't turn up, nor did she phone me or her office.

Oh that's awful Doug - I do hope you weren't left in a bad situation.

It begs the question of did the agancy know that she hadn't arrived, i.e., does the agency have an alert system?

Love and hugs xxx

[Lynne K]

Doug Carpenter oh dear! I hope that you get a good replacement quickly xx

[Doug Carpenter]

A carer i don't see very often was due to sit with me for four hours yesterday afternoon. She didn't turn up, nor did she phone me or her office.

The company fired her.

Doug

[Olivia H]

Jeanette, also just been catching up on the forum after Christmas.
Sounds like a very stressful time but glad you have some interim care support now and wishing you both well xx

[Deb]

Oh Janette, I've just read your post!

Sending you love, thoughts and huge hugs tonight lovely lady xx 😘 🤗

[Music man's wife]

We have what they call a rehab team here, they will come in in an emergency with carers as and when needed. Based at our local cottage hospital and accessed through the district nurses and GP.
Hope all goes well for you and your hubby.

[Nettie]

I know 🤦🏼♀️ Like you say big girl pants on 💪🏻 Yes social services they said they will carry on until a proper care package is put in place 👍 Janette xx

[Ellie]

starting my emergency care tomorrow morning to get me up, shower and later to put me to bed 😬 so that’s a weight off my mind

That's great news! It will be hard for you Janette, also for the carers, as you get to know what's what - Big Girl pants on and think that, without the carers washing your bits and bobs, you might be spending the day in bed, in pads. Carers have seen it all...

So happy that you'll be in your own home. Was it Social Services who organised it? 😘😘

[Nettie]

Suefromwakey I get what you mean about Turkey, they were always doing it, it happened to us a few times, a wonderful country but don’t have the same health & safety as we do 😬

[Nettie]

Thank you all, I just can’t help feeling like I caused it but I know you’re all right 👍 thanks 😊
Hopefully he will get better soon 👍 The good news is a care team just came to assess me on the return truck and are starting my emergency care tomorrow morning to get me up, shower and later to put me to bed 😬 so that’s a weight off my mind xx

[Ellie]

He chokes on his food and drink more than I do 🤦🏼♀️ I’ve seen the odd twitches in his legs, but this week he can’t move his arms, can’t walk properly, can’t get up from settee and can’t sleep because he can’t get comfy.

Oh Janette, I can understand why you're so worried about Phil - BUT - that's all 4 limbs together plus swallowing difficulties, MND doesn't come on like that. He'd have trouble with fine motor skills before his arms sustained that much motor neuron damage.

He won't have the agility of a man 10yrs his younger, but I'm glad he's getting himself checked out.

And Janette, you are not to blame for anything... This might prompt him to get in some outside help 🤞🤞

Biggest hug to you xx

[Suefromwakey]

Janette I get where you are coming from, I too have had twitching in the arms and said to Albert only yesterday could it even be possible, I'm writing it off as a trapped nerve or something, BUT I think it's the situation that gets you thinking the worst possible thing, you will be looking for everything although Phil seems to have several pointers for something,

I don't want to be condescending here but unless someone tells me different I don't see how you could possibly have caused this for him, looking after you can perhaps cause some problems for him but surely to god not this, does anyone know of any twosome that had this thing together?

For me I think about when we were both sat in a bar covered with plants and shrubs etc, about 30 years ago, in Turkey and they decided to "Spray the Mossies" we both took full blast of what I suspected was not something we would have used in this country - is it possible this is a connection? as soon as I get a twinge it comes back to my mind, I'm probably being daft, so what I am trying to say is don't blame yer sen - easy to say though,

I'll be very interested in how the emergency care pans out for you,

Best wishes

Sue

[matthew55]

Its not you.