Announcement

Collapse
No announcement yet.

Transfering

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Transfering

    I’m still having to transfer from my RR chair to my powered wheelchair using my walker. But it’s precarious. I had a Return platform’s loaned to me but it’s difficult to move on our thick carpets so not attempting it. I’m waiting on a call in the new year from the council OT about ceiling hoists. That can’t come soon enough xx
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    #2
    Lynne, could you use a turntable, by that I mean one of these:

    Turntable.jpg

    It would mean you'd have to rely on Steve, as it's a 2 person job. It's a basic patient turner from one chair/ bed to another, directly beside each other.

    So, my turntable is put on the floor, as above, and I am helped to stand and, once standing, I'm supported by the person as they turn the turntable with their foot and turn you 90 or 180 degrees so your lined up with the next chair.

    You do need to weightbear and the other person needs to support you - there is no lifting or taking your body weight by the other person.

    It might work as a stop gap measure and they're cheap (Amazon) I don't know if one would be suitable for you. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    Comment


      #3
      Ellie thanks, showed that to Steve. Where did you get it? xx
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

      Comment


        #4
        I googled it,they vary from £15.32 at NRS to £34 something. Is the most expensive one potentially better? Xx
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

        Comment


          #5
          I ordered the most expensive one from DS Medical. Thanks again Ellie xx
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

          Comment


            #6
            Originally posted by Lynne K View Post
            they vary from £15.32 at NRS to £34 something
            I have the cheap one Lynne but even 30 quid will be worth it if it works, eh! xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            Comment


              #7
              Ellie thanks xx
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

              Comment


                #8
                Lynne K Im very much like you in so much as every time I transfer I am half expecting to fall and if I do I cannot get up. I have to transfer from bed to wheelchair to loo to shower chair to wheelchair and to RR. I struggle to stand and then turn 90 degrees to whatever I then need.

                When I cannot stand because of tiredness I use a slide board. It needs another person to slide it under your bum, well it certainly does for me as I can’t lift myself up to raise my bum and then slide board under me. You also need help as you slide to ensure you don’t slide off.

                Please let us know how you get on with the round thing

                Richard
                Richard

                Comment


                  #9
                  richard I have to do the same as you said about bed to wheelchair; wheelchair to loo, to shower chair or to RR chair. I don’t have any idea how a slide board works. We have a small flat and my RR chair is parallel to the window. To my left is my table and further left next to the table is my powered wheelchair. In front of my table is my walker angled so that I can reach both handles when I stand (using the rise position on my chair). Maybe you could describe this layout of your RR chair and wheelchair when using the board and bed with wheelchair, thanks.

                  I’ll definitely let you know how the turning platform goes xx
                  ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                  I'm staying positive and taking each day as it comes.

                  Comment


                    #10
                    My OT came with 2 different slide boards recently but they were not suitable for me. I couldn’t even lift my bottom up for the board to slide under me. My husband has to help me to stand up from bed and chair. I will ask about the turntable.

                    Comment


                      #11
                      Madge good luck Madge. As you might have noticed I’ve ordered a turntable £30 plus packaging but there are cheaper ones. Ellie said that she’s using a cheap one and seems happy with it. Buying yourself you’ll get one much more quickly than waiting for council services to get you one. Good luck xx
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                      I'm staying positive and taking each day as it comes.

                      Comment


                        #12
                        I have been to the loo 4 times independently today first 6am, the rest after showered and dressed (Steve did a lot). Just about still using walker to get to my powered wheelchair but when getting up from bed it’s more difficult as I stretch over to armrest on wheelchair with one hand and hold bed guard with other. Then pull and push leaning where necessary to not fall. I wouldn’t be able to wake Steve to help.

                        At my appointment at Wythenshaw on 15th I’m going to ask them to put a normal catheter in me so I don’t have to go to the loo in the night and can drink more freely. I seriously hope that they agree to a suprapubic catheter and PEG xx
                        Last edited by Lynne K; 4 January 2022, 13:03.
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                        I'm staying positive and taking each day as it comes.

                        Comment


                          #13
                          Peeing overnight is blissful 👌🤗😂😍xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                          Comment


                            #14
                            Originally posted by Lynne K View Post
                            At my appointment at Wythenshaw on 15th I’m going to ask them to put a normal catheter in me so I don’t have to go to the loo in the night and can drink more freely.
                            Sounds like a plan Lynne K On the plus side, you get to road test an indwelling catheter and find its pitfalls so, if you are turned down for a suprapubic catheter for a non-medical reason, you can argue for one because of XYZ.

                            If you wanted to, you could ask your district nurse to fit one for you before the 15th. xx
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            Comment


                              #15
                              Originally posted by Ellie View Post
                              Sounds like a plan Lynne K On the plus side, you get to road test an indwelling catheter and find its pitfalls so, if you are turned down for a suprapubic catheter for a non-medical reason, you can argue for one because of XYZ.

                              If you wanted to, you could ask your district nurse to fit one for you before the 15th. xx
                              Yes Ellie, good ideas as always from you. How do I get in touch with a district nurse? xx
                              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                              I'm staying positive and taking each day as it comes.

                              Comment

                              Working...
                              X