just to let you know that all you fighting this horrific disease are in my thoughts daily. I log in here most days. You were my lifeline when my Mick was diagnosed. Sadly, its 2 and a half years almost since his passing. I continue to support you all. on the 1st January I start my 15k a day step challenge to raise money for hopefully a cure.
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thinking of you all
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shrew Lovely to hear from you S - I often think of you and Mick too and of the fitting send off he got ππππ
Good luck with your fundraising π€πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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thanks everyone. Up early and got long walk in so I will be ok today, over 12k already. I'm hoping to raise the Β£150 target, so many people have sponsored me in the past so unsure if I will reach my target. As a family we have raised through sponsored events collection , funeral donation over 3k. Rosemarie, I don't have a link, rubbish with computers! but If anyone wants i can post my full name on here and you can find me on facebook where I've posted the information.
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