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thinking of you all

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    thinking of you all

    just to let you know that all you fighting this horrific disease are in my thoughts daily. I log in here most days. You were my lifeline when my Mick was diagnosed. Sadly, its 2 and a half years almost since his passing. I continue to support you all. on the 1st January I start my 15k a day step challenge to raise money for hopefully a cure.

    #2
    Thank you shrew. Time has flown by and it hardly seems like 2 years.

    Yes, hopefully Lee will deliver next year and I am hopeful for my app!

    Blimey girl! You must be fit!
    Copyright Graham

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      #3
      Thanks Shrew. I wish you well with the challenge. 15 k per day, I can’t do one πŸ˜‚ Go for it and if there is a sponsor link please post it.

      Richard
      Richard

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        #4
        Good on you Shrew. Many many thanks. πŸ˜πŸ‘πŸ€—πŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          shrew
          Forum Member
          shrew thanks for your efforts xx
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

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            #6
            shrew
            Forum Member
            shrew thank you. That sounds a big challenge. Where can we sponsor?

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              #7
              Well done shrew re the challenge. Hope you've picked some nice walks.
              Diagnosed May 2021 bulbar onset als.

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                #8
                shrew
                Forum Member
                shrew Lovely to hear from you S - I often think of you and Mick too and of the fitting send off he got πŸπŸπŸπŸ’–

                Good luck with your fundraising πŸ€—πŸ˜˜
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  hi shrew
                  thats a wonderful thing to do. well done you
                  love and hugs
                  denise xxx
                  when i can think of something profound i will update this.

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                    #10
                    shrew
                    Forum Member
                    shrew So lovely to hear from you . I can't believe its two and a half years since you lost your Mick.

                    Wishing you all the best with your fantastic fundraising.
                    ​​​​​​​Love Debbie x

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                      #11
                      thanks everyone. Up early and got long walk in so I will be ok today, over 12k already. I'm hoping to raise the Β£150 target, so many people have sponsored me in the past so unsure if I will reach my target. As a family we have raised through sponsored events collection , funeral donation over 3k. Rosemarie, I don't have a link, rubbish with computers! but If anyone wants i can post my full name on here and you can find me on facebook where I've posted the information.

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                        #12
                        All the best with your challenge Shrew, thanks for doing it and posting xx
                        Diagnosed July 2020, ALS bulbar onset.

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