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thinking of you all

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    thinking of you all

    just to let you know that all you fighting this horrific disease are in my thoughts daily. I log in here most days. You were my lifeline when my Mick was diagnosed. Sadly, its 2 and a half years almost since his passing. I continue to support you all. on the 1st January I start my 15k a day step challenge to raise money for hopefully a cure.

    #2
    Thank you shrew. Time has flown by and it hardly seems like 2 years.

    Yes, hopefully Lee will deliver next year and I am hopeful for my app!

    Blimey girl! You must be fit!
    Copyright Graham

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      #3
      Thanks Shrew. I wish you well with the challenge. 15 k per day, I can’t do one πŸ˜‚ Go for it and if there is a sponsor link please post it.

      Richard
      Richard

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        #4
        Good on you Shrew. Many many thanks. πŸ˜πŸ‘πŸ€—πŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          shrew thanks for your efforts xx
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

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            #6
            shrew thank you. That sounds a big challenge. Where can we sponsor?
            Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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              #7
              Well done shrew re the challenge. Hope you've picked some nice walks.
              Diagnosed May 2021 bulbar onset als.

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                #8
                shrew Lovely to hear from you S - I often think of you and Mick too and of the fitting send off he got πŸπŸπŸπŸ’–

                Good luck with your fundraising πŸ€—πŸ˜˜
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  hi shrew
                  thats a wonderful thing to do. well done you
                  love and hugs
                  denise xxx
                  when i can think of something profound i will update this.

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                    #10
                    shrew So lovely to hear from you . I can't believe its two and a half years since you lost your Mick.

                    Wishing you all the best with your fantastic fundraising.
                    ​​​​​​​Love Debbie x

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                      #11
                      thanks everyone. Up early and got long walk in so I will be ok today, over 12k already. I'm hoping to raise the Β£150 target, so many people have sponsored me in the past so unsure if I will reach my target. As a family we have raised through sponsored events collection , funeral donation over 3k. Rosemarie, I don't have a link, rubbish with computers! but If anyone wants i can post my full name on here and you can find me on facebook where I've posted the information.

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                        #12
                        All the best with your challenge Shrew, thanks for doing it and posting xx
                        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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