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I am trusting that today is not going to be the way from now on

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    #16
    It very much is the nature of the disease that fools everyone. We are consumed from the inside out.

    It is much easier to think of it as 'extra time' following diagnosis.

    However, the bills still need paying, care professionals won't help until too late...

    Love and cuddles xxxx
    Copyright Graham

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      #17
      Graham what an example in determination and patience!! I don't know what's involved in making an app. but a great thing to be able to contribute, how's it getting on?. x
      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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        #18
        It is work as normal for me Heather, first and foremost. It is how I was before I got my diagnosis of MND. It gives me 'normality'.

        I decided I would do something 'Spectacular', after all, nothing to lose if I fail.

        I have been working solid on my comprehensive care app for 3.5 years now. It will do everything I need to manage my DP account.

        More info on 'EQUIPMENT AND TECHNOLOGY' - What would a good care app include?

        xx
        Last edited by Graham; 6 January 2022, 02:03.
        Copyright Graham

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