I managed to get to the respiratory team at Oxford today and came home with a BiPAP machine to help with my breathing. What a relief! I’ll see how it goes tonight...
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Rosemary6NT that’s good Rosemary. Good luck for a good nights sleep xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Originally posted by Rosemary6NT View PostI managed to get to the respiratory team at Oxford today and came home with a BiPAP machine to help with my breathing. What a relief! I’ll see how it goes tonight...
Hope all goes well....you can take your time to get use to it 😘🤗Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.
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Rosemary6NT Yes, I know you want to start using it asap but don't put pressure on yourself to use it all night from the get go.
Perhaps try it this evening watching TV for an hour or so to get used to how it feels, then try it in bed.
What type of mask did you get - nose only, one that covers your mouth and nostrils or one that covers your mouth and nose?
Hope it improves your sleep. xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Rosemary6NT hope you had a good night with it. I would certainly prefer not to have need of one, but have got used to it and find it helpful. xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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