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    Hospice

    Hi

    For those of you who have access to your local hospice are you still attending their day car/ therapies. My husband was recently referred to our local hospice in Warrington to provide possible sit in service for a couple of hours a week or for him to attend one day a week but was informed they are not providing this at present

    #2
    Piglet our hospice is Bury and has put me down for a leg massage. They don’t have full day services xx
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

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      #3
      Hi Lynn. So do you go there for the massage.x

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        #4
        When I visit DH in the hospice I check in opposite the day hospice. I've never seen anyone there.

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          #5
          Originally posted by Piglet View Post
          Hi Lynn. So do you go there for the massage.x
          I only met the Outreach leader Carol on Monday and she’s referred me to the team xx
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

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            #6
            Mmm so maybe all day facilities are unavailable at present. Thankyou x

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              #7
              Lynn. it was the out reach worker that told me there was nothing on offer at present. I’m glad you’ve been able to access your x

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                #8
                Piglet thanks x
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.

                Comment


                  #9
                  Piglet Day Hospice in my hospice reopened for a few weeks late last summer before closing again. xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                    #10
                    Thanks Ellie. So it’s not just Warrington. I know you have had respite at your Hospice do you ever use the day facilities.xx

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                      #11
                      Originally posted by Piglet View Post
                      I know you have had respite at your Hospice do you ever use the day facilities.xx
                      I sure did use the Day Hospice - physiotherapy, massage, nursing, counselling 👍👍 The mindfulness wasn't for me (kept giggling 🙄) and I couldn't do the art therapy nor eat the free lunch, but I looked forward to going - got me out of the house and meeting more people. xx

                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                        #12
                        Sounds good. Shame it’s not on offer anymore. Glad you had some giggles there😀😀xx

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                          #13
                          Hi Piglet, since I was diagnosed 18 months ago the Skakespeare hospital in Stratford upon Avon has not been open for day hospice due to covid.No date set for reopening either,
                          best wishes
                          Mary

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                            #14
                            I'm west Midlands and I go to day unit. Its been open since August. I know I am lucky.
                            Diagnosed May 2021 bulbar onset als.

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                              #15
                              Originally posted by shelly21 View Post
                              I'm west Midlands and I go to day unit. Its been open since August. I know I am lucky.
                              About time you'd a bit of luck Shelly 😏😘😘
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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