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    Splints

    My wrists have got very weak now and fold up on me. Splints have been mentioned but ie have no idea what they are like.
    It's all funny

    #2
    Can't help you there, sorry mate. ✌️xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      Originally posted by keno View Post
      My wrists have got very weak now and fold up on me. Splints have been mentioned but ie have no idea what they are like.
      My lack of muscle around my wrists cause my hands and fingers to curl in and I was given these splints to wear in bed, but they wouldn't be great if you needed for daytime use for people with hand function... (I have no hand function)



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      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #4
        Ellie I have been given those too - for night time - to both rest the muscles and stop them curling up and stiffening apparently.

        keno - I hope you find something to help you. I still have some very limited use of my left wrist and hand but find it just gets very tired and achey, rather than folding up. It can't hold anything though, so pretty basic functionality.
        Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

        Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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          #5
          TinyLady The earlier you start wearing them, the better - if muscles weaken and contract too much, it can feel as if you're wearing a stretching rack...

          I find them very good, hope you do too.

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Ellie had mine fitted today (been using off the shelf for a week). I have the tiniest hands (I'm very tiny, but my hands are particularly small) - I'm looking forward to wearing it later. Currently forcing my left hand to help my right hand do a Jigsaw.... it's like having a drunk toddler helping, but trying to keep using it as long as possible.
            Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

            Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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              #7
              I just got a finger thing to use, but having one wrist not working, i had to use the new glove with a wrist support over (bought on the net, i chose one with with only 1 closer). First time i've eaten with 2 hands for a while. Can't wear the wrist strap in the car, it needs to bend to hold the steering wheel. Orthotics departments have a wide range of specialist apparatus to choose from. Get the nearest orthotics department to where you live.
              Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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