I have been wearing medium pull up nappies from day one. Something made me order large and the difference is astonishing. Comfort is a warm, well fitted nappy! ๐ถ๐ฅ๐๐xx
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Itโs a normal one, tube between legs up to bladder and bag on leg. Going to Wythenshaw next Wednesday to breathing team to discuss PEG and suprapubic catheter but if the normal catheter works and isnโt too uncomfortable Iโll stick with that xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Originally posted by Nettie View PostOh right wasnโt sure which one to ask for, hope all goes well with the peg I had mine done at Wythenshawe theyโre lovely โฅ๏ธ XALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Originally posted by Nettie View Post... do I just ask the continence clinic for that?
Good luck xx
โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Originally posted by Nettie View Post
I think it was a couple of weeks after but that was 2 years ago Iโm not sure in the current climate, hope you get sorted soon ๐ xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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