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  • Heather R
    replied
    Thanks for sharing everyone, it helps to know you all experience these understandable ups and downs like me xx

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  • Music man's wife
    replied
    Sending a hug Mary, you offer me great support so I would like to return the complement xx

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  • Rosemary6NT
    replied
    Originally posted by Ellie View Post
    Rosemary, ask for a different mask, one which allows for wearing glasses, and do not feel bad about asking !! It's a quality of life issue...

    This is the mask I wear, it covers the mouth and nostrils, the same as your one, but it doesn't go up the face - it's called the Amara View, by Philips Respironics, who also make a similar fit mask, the DreamWear, and there are nasal pillow masks too. xx


    Oh that’s good to know Ellie, I’ll see if I can get that sorted xx

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  • LindaB
    replied
    Mary C I think because of our profession we know counselling works. You have a good day too. My granddaughter visiting☕🍰

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  • Mary C
    replied
    LindaB
    I use you tube Christian meditations sometimes before Night time sleep.I had months of counselling until I felt I had talked through everything I wanted to.

    Thankfully I sleep ok but due to dry mouth I-wake a few times for a drink of water and have no problem nodding back off.Dry mouth ongoing for 18 months despite sprays, artificial saliva, pineapple juice etc.

    A grey rainy day.A friend just left so back to the book I am enjoying.Don’t feel like going out today so far.Have a good day.
    Best wishes
    Mary xx

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  • Ellie
    replied
    Originally posted by Rosemary6NT View Post
    Unfortunately the mask means I can’t wear my glasses to watch or read with it on.
    Rosemary, ask for a different mask, one which allows for wearing glasses, and do not feel bad about asking !! It's a quality of life issue...

    This is the mask I wear, it covers the mouth and nostrils, the same as your one, but it doesn't go up the face - it's called the Amara View, by Philips Respironics, who also make a similar fit mask, the DreamWear, and there are nasal pillow masks too. xx



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  • Lynne K
    replied
    Rosemary6NT I hope that you can get distance glasses quickly. A call to your optician may get you a home visit. Or if you know your distance prescription somebody could pick an off the shelf pair up for you from Boots or somewhere. Good luck xx
    Last edited by Lynne K; 8 January 2022, 10:00.

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  • Rosemary6NT
    replied
    Originally posted by LindaB View Post
    Rosemary6NT I'm lucky my glasses just fit on top of the mask. They are a vintage cats eye style...maybe that's why🤷🏼‍♀️

    Annoying if you can't read or watch TV using NIV...maybe your respiratory nurse can make some suggestions? 😘
    I may be able cope if I get new distance glasses. At the moment I have variefocals

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  • LindaB
    replied
    Rosemary6NT I'm lucky my glasses just fit on top of the mask. They are a vintage cats eye style...maybe that's why🤷🏼‍♀️

    Annoying if you can't read or watch TV using NIV...maybe your respiratory nurse can make some suggestions? 😘

    Leave a comment:


  • Rosemary6NT
    replied
    Originally posted by LindaB View Post
    I think counselling is a great idea for any of us.

    I do also find benefits from mindfulness...it works for me. Headspace App is good...there's also episodes on Netflix.

    There's a good book Mindfulness in Eight Weeks by Michael Chaskalson. With guided practices.

    😘
    A friend has mentioned Headspace, I must look into it

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  • Rosemary6NT
    replied
    Originally posted by Mary C View Post
    Hi Rosemary, It makes sense that the more physical decline we experience the lower we are likely to feel low in mood.
    Think you were getting a NIV to help breathing.Is the NIV helping you get some sleep.?
    best wishes
    Mary
    I’m still trying to get used to it. I haven’t tried it during the night yet. Probably tonight. Unfortunately the mask means I can’t wear my glasses to watch or read with it on.

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  • LindaB
    replied
    I think counselling is a great idea for any of us.

    I do also find benefits from mindfulness...it works for me. Headspace App is good...there's also episodes on Netflix.

    There's a good book Mindfulness in Eight Weeks by Michael Chaskalson. With guided practices.

    😘

    Leave a comment:


  • Mary C
    replied
    Hi Rosemary, It makes sense that the more physical decline we experience the lower we are likely to feel low in mood.
    Think you were getting a NIV to help breathing.Is the NIV helping you get some sleep.?
    best wishes
    Mary

    Leave a comment:


  • Rosemary6NT
    replied
    Thank you for your post @MaryC. As my breathing deteriorated markedly and I couldn’t sleep in my bed I’ve been very down. Quality of sleep seems crucial to coping or not coping with the day. I think I need to get some counselling, I haven’t felt the need until recently when my physical deterioration has been more rapid and I have got much more tearful and less resilient.

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  • Lynne K
    replied
    Mary C that’s smashing Mary xx

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