Keeping upbeat

[Heather R]

Thanks for sharing everyone, it helps to know you all experience these understandable ups and downs like me xx

[Music man's wife]

Sending a hug Mary, you offer me great support so I would like to return the complement xx

[Rosemary6NT]

Rosemary, ask for a different mask, one which allows for wearing glasses, and do not feel bad about asking !! It's a quality of life issue...

This is the mask I wear, it covers the mouth and nostrils, the same as your one, but it doesn't go up the face - it's called the Amara View, by Philips Respironics, who also make a similar fit mask, the DreamWear, and there are nasal pillow masks too. xx

Oh that’s good to know Ellie, I’ll see if I can get that sorted xx

[LindaB]

Mary C I think because of our profession we know counselling works. You have a good day too. My granddaughter visiting☕🍰

[Mary C]

LindaB
I use you tube Christian meditations sometimes before Night time sleep.I had months of counselling until I felt I had talked through everything I wanted to.

Thankfully I sleep ok but due to dry mouth I-wake a few times for a drink of water and have no problem nodding back off.Dry mouth ongoing for 18 months despite sprays, artificial saliva, pineapple juice etc.

A grey rainy day.A friend just left so back to the book I am enjoying.Don’t feel like going out today so far.Have a good day.
Best wishes
Mary xx

[Ellie]

Unfortunately the mask means I can’t wear my glasses to watch or read with it on.

Rosemary, ask for a different mask, one which allows for wearing glasses, and do not feel bad about asking !! It's a quality of life issue...

This is the mask I wear, it covers the mouth and nostrils, the same as your one, but it doesn't go up the face - it's called the Amara View, by Philips Respironics, who also make a similar fit mask, the DreamWear, and there are nasal pillow masks too. xx

[Lynne K]

Rosemary6NT I hope that you can get distance glasses quickly. A call to your optician may get you a home visit. Or if you know your distance prescription somebody could pick an off the shelf pair up for you from Boots or somewhere. Good luck xx

[Rosemary6NT]

Rosemary6NT I'm lucky my glasses just fit on top of the mask. They are a vintage cats eye style...maybe that's why🤷🏼♀️

Annoying if you can't read or watch TV using NIV...maybe your respiratory nurse can make some suggestions? 😘

I may be able cope if I get new distance glasses. At the moment I have variefocals

[LindaB]

Rosemary6NT I'm lucky my glasses just fit on top of the mask. They are a vintage cats eye style...maybe that's why🤷🏼♀️

Annoying if you can't read or watch TV using NIV...maybe your respiratory nurse can make some suggestions? 😘

[Rosemary6NT]

I think counselling is a great idea for any of us.

I do also find benefits from mindfulness...it works for me. Headspace App is good...there's also episodes on Netflix.

There's a good book Mindfulness in Eight Weeks by Michael Chaskalson. With guided practices.

😘

A friend has mentioned Headspace, I must look into it

[Rosemary6NT]

Hi Rosemary, It makes sense that the more physical decline we experience the lower we are likely to feel low in mood.
Think you were getting a NIV to help breathing.Is the NIV helping you get some sleep.?
best wishes
Mary

I’m still trying to get used to it. I haven’t tried it during the night yet. Probably tonight. Unfortunately the mask means I can’t wear my glasses to watch or read with it on.

[LindaB]

I think counselling is a great idea for any of us.

I do also find benefits from mindfulness...it works for me. Headspace App is good...there's also episodes on Netflix.

There's a good book Mindfulness in Eight Weeks by Michael Chaskalson. With guided practices.

😘

[Mary C]

Hi Rosemary, It makes sense that the more physical decline we experience the lower we are likely to feel low in mood.
Think you were getting a NIV to help breathing.Is the NIV helping you get some sleep.?
best wishes
Mary

[Rosemary6NT]

Thank you for your post @MaryC. As my breathing deteriorated markedly and I couldn’t sleep in my bed I’ve been very down. Quality of sleep seems crucial to coping or not coping with the day. I think I need to get some counselling, I haven’t felt the need until recently when my physical deterioration has been more rapid and I have got much more tearful and less resilient.

[Lynne K]

Mary C that’s smashing Mary xx