Exercise

[Lynne K]

Still transferring with my walker to wheelchair. Steve rearranged my chair and side table so now my RR chair is next to my wheelchair. That’s making transfers easier as only a couple of steps but my table is now on my weakest side with my weakest hand but he’s doing his best for me. Catheter tomorrow morning so less transfers needed xx

[Lynne K]

It's great you're keeping as independent as possible Lynne K . I was advised gentle exercise was ok but never to the point of increased fatigue....it's a balancing act....for us literally😃😘

Sure is a balancing act in its death throes xx

[LindaB]

It's great you're keeping as independent as possible Lynne K . I was advised gentle exercise was ok but never to the point of increased fatigue....it's a balancing act....for us literally😃😘

[Lynne K]

Hi Lynne K. Its fantastic that you're exercising and fighting. Go girl !

I really really don't want to be the voice of doom and I know I'm probably stating the obvious but please take special care not to have a bad fall during this really hard stage, Hugs to you x😘🤗

Thanks Deb. I’m super careful don’t worry and I know that it’s coming to an end of the little bit of independence that I’ve got so I’m making the most of it. The future is soon so as you know I blank it out and make the best of today. That’s been hard for a couple of weeks now seeing as I’ve had to accept Steve showering me, drying me (mostly) and doing almost all of dressing me in day clothes. But I’m still independently putting on my clean knickers and silk pjs each evening after Steve has undressed me. He’s been helping with bras for months xx

[Deb]

Hi Lynne K. Its fantastic that you're exercising and fighting. Go girl !

I really really don't want to be the voice of doom and I know I'm probably stating the obvious but please take special care not to have a bad fall during this really hard stage, Hugs to you x😘🤗

[Lynne K]

Lynne K An hour of non-stop exercise sounds a lot Lynne, especially pedaling if your legs are weakening 🤔

Certainly if your legs feel tired or shaking afterwards, it might be advisable to do maybe 3 x 20min sessions throughout the day, but you know your body best. xx

Ellie thanks for your kind suggestion but my legs weren’t shaking when I’d finished. I only did half hour last time because I’d gotten out of the daily habit of using my peddler and hadn’t used it since before Christmas. So I thought less would be good to start (I used to do an hour). Today my legs just felt more stiff but they always have done when I peddled. But I felt refreshed after a better nights sleep (morphine has a lot to do with that) so felt up to the hour. I won’t be able to do this soon so I made the most of it. Xx

[Ellie]

Lynne K An hour of non-stop exercise sounds a lot Lynne, especially pedaling if your legs are weakening 🤔

Certainly if your legs feel tired or shaking afterwards, it might be advisable to do maybe 3 x 20min sessions throughout the day, but you know your body best. xx

[Lynne K]

I set myself up on my floor peddler and did an hour in 5 minutes forward and 5 minutes backwards repeated. I ought to do this every day to keep the circulation in my legs. I’m getting twitching in them on and off now so my days of transferring from my RR chair to wheelchair using my walker and going to the loo independently are numbered but I’m fighting it all of the way. Xx