Slipped and went down backwards. Not hurt and luckily had two ladies on hand to get me up. 🙄😁👆😍xx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
Ah, glad that you weren’t hurt or left on the floor for ages xxOriginally posted by matthew55 View PostALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
Hi Matthew.Glad help was on hand.
Best wishes
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You mean you slipped when your carers were there...is this the new team?Originally posted by matthew55 View Post
Hope you're ok...falling shakes you up🙏Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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My brilliant new team were indeed on hand. I just felt a bit stupid. My pride, was hurt not my body. I fell onto carpet and rug between sofa and coffee table. 🤔😁😉😍xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Oh, I think there has to be stitches or staples involved for it to be classed as a proper fall 😉😍Originally posted by matthew55 View Post
Seriously though, I'm glad you're not badly hurt and help was on hand. 😘😘
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I'm sure staples and stitches are in my future. 🔮🤕😁😍xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Oh no! This sort of thing is really unsettling. Take careDiagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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Rugs.....we love....but very risky😏
Glad you're ok😉Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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matthew55 I hope not too many bruises. Breaking your carers in gently then?Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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In at the deep end 🏊♂️🏊♀️👀😁xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Typical Matthew - Falls for his new carers😀 Please excuse my humour and I’m pleased you were OK. When I now fall I cannot get up and the last time I needed an ambulance 😢RichardComment
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Yes I love rugs too Matthew, glad you fell on one. As Linda said, I guess we will have to think of giving them up sometime xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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matthew55 Very surprised (and pleased for you) that the carers got you up. When i was working as a carer, we were told to call 999, we were not to try and pick anyone up; perhaps there are different rules for 2 carers, rather than 1? Very scary though. I went backwards over our dog, and in trying to miss her, slammed my back against a desk. Fortunately, better now.Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.Comment
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