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Managing constipation with a PEG

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    #1

    Managing constipation with a PEG

    Hi all,

    Hope you are well. My hubby has a really bad distended abdomen and after a 12 hour A and E visit, his xray showed it was just constipation. He had an enema that helped but still having problems,. It was awful in A and E. Try not to go if you can. So many reasons why: no clue about MND and total inefficiency. Not medics fault I know. We ended up self discharging. He has a PEG. He is having small bowel movements. PBP

    Grateful for any help.
    Tags: None
    #2
    I use Picosulfate as I can no longer pass anything bigger than a carrot! I call it water maker! 🥕😁😜😘xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      jomo Is this bout of constipation a one off or is he regularly constipated?

      As he has had a PEG, laxatives and lots of water can go down the tube.

      For impacation, Movicol/Laxido is usually advised, given as directed, sometimes in conjunction with a suppository, but the enema would have done the same job.

      He may need a daily or almost daily laxative regimen to keep constipation at bay. If he gets food through the PEG, a fibre enriched product might be good, as is plenty of water. xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
      ​

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        #4
        The softener Docusate tabs is my little friend of choice taken when 1st sense something building up. Doesn’t work straight away and then like I imagine childbirth feels.
        Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.
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          #5
          I use nutricia drinks called compact fibre. They work very quick for me. Have you spoke with your dietician for any advice.
          Diagnosed May 2021 bulbar onset als.

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            #6
            shelly21
            Hi Shelly, I use nutricia compact supplements but need small dose of laxido each morning to prevent constipation.I have 5 x125 ml bottles daily via RIG plus water orally and via RIG.
            Hope you are getting on ok?
            best wishes
            Mary x

            Comment

              #7
              Mary C Mine is called compact fibre on the bottle. Its great for me. X
              Diagnosed May 2021 bulbar onset als.

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                #8
                Originally posted by Mary C View Post
                I have 5 x125 ml bottles daily via RIG
                Sorry for jumping in Mary: 5 bottles of Nutricia's Fortisip Compact provides 1500 calories, which may be what your Dietitian advised but, may I ask if you're losing weight? (1500 seems on the low side for calorie intake, but maybe it's right for your body size)

                The ordinary Fortisip Compact 'drinks' have 0g fibre in a bottle, whilst the Fortisip Compact Fibre contain 4.5g fibre per bottle.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                ​

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