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    Just had great vid meeting with ART the communications people and I might get the same system as, Stephen used! πŸ˜πŸ€—πŸ˜ŠπŸ˜˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Originally posted by matthew55 View Post
    I might get the same system as, Stephen used!
    Can you not get an eye gaze device? It's a lot easier... xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      I asked about it but they recommended other things. This Friday they're bringing loads of stuff for me to try. Stephen used switch. 😊😘😊❀️xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        I learned today that Prof Hawkins had a muscle near his eye he could still control. He used it to operate a button that beamed a laser to his glasses then onto the computer. I am trying a stand with a big screen and a mouse. As well as other stuff, I will let you know what happens. πŸ‘€πŸ˜πŸ‘ŒπŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Originally posted by matthew55 View Post
          Stephen used switch.
          I know - eye gaze is far superior to a switch and scan system. You'd end up kicking it down the stairs with a leg tremor out of sheer frustration πŸ˜‹ but by all means try it, it might have just me being me and thinking it most inadequate.

          I'm glad you're (finally) going to have accessible tech 😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            The best bit is it's on extended loan and I can change my system whenever I want. Repairs and exchanges are free too. Getting my Christmas late init! πŸ€ΆπŸŽ„πŸŽπŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              Matthew

              Thats goos news after months of frustration.
              best wishes
              Mary

              Comment


                #8
                That sounds great Matthew, hope it really helps x
                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                Comment


                  #9
                  Tomorrow, tomorrow, I love ya tomorrow, you're only a day away! πŸ˜ŠπŸ˜πŸ€—πŸ˜˜xx https://media.tenor.com/images/02d65...4220/tenor.gif
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    We I settled for a windows based small screen with bespoke stand. A lap pad with a mini touch screen. I'm getting a mount for my bed too. 4 weeks or less. Very happy. 😁😁😁😁😁😁😁😁😁😁😁😁xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      Glad things are falling into place for you matthew55 πŸ‘πŸ»πŸ‘πŸ»πŸ˜‰
                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                        #12
                        And my unit can be controlled by all sorts including eye. πŸ‘οΈπŸ˜πŸ˜πŸ˜xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          #13
                          Originally posted by matthew55 View Post
                          We I settled for a windows based small screen with bespoke stand. A lap pad with a mini touch screen. I'm getting a mount for my bed too. 4 weeks or less. Very happy. 😁😁😁😁😁😁😁😁😁😁😁😁xx
                          Great stuff xx
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

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                            #14
                            Oh that's a great result πŸ‘πŸ‘πŸ‘πŸ‘

                            Originally posted by matthew55 View Post
                            I settled for a windows based small screen with bespoke stand. A lap pad with a mini touch screen.
                            I'm a bit thick 😁 Is that 2 devices - a small screen tablet on a stand plus a mini lap pad which are linked and you use the mini screen as a keyboard and mouse, or are they 2 full devices which you can use independently depending on where you are?

                            Roll on easy access to technology 😘😘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

                            Comment


                              #15
                              One device that unclips then transferred. The wireless touch screen is velcro backed, 3 inches across and the bean filled mat has velcro. They are bringing more velcro so I can attach my phone. I just hope I'm here to enjoy it. πŸ˜πŸ˜‚πŸ˜‰β€οΈxx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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