Different gravy and such a difference to the last lot. Right at Home gets a massive thumbs up from me. ππππ€xx
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Originally posted by matthew55 View PostDifferent gravy and such a difference to the last lot. Right at Home gets a massive thumbs up from me. ππππ€xxInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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I'm going to ring a few this morning. I've got a card with money on to pay for care and a few numbers to call from caring for carers. I suppose they come here and discuss our needs. I'm hoping to get a 4 hour break for me and somewhere Stephen can go and get him out of the house. I feel a bit nervous as the last lot I tried really upset me and put me right off.when i can think of something profound i will update this.
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Originally posted by matthew55 View PostDifferent gravy and such a difference to the last lot. Right at Home gets a massive thumbs up from me. ππππ€xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Originally posted by denise View PostI'm going to ring a few this morning. I've got a card with money on to pay for care and a few numbers to call from caring for carers. I suppose they come here and discuss our needs. I'm hoping to get a 4 hour break for me and somewhere Stephen can go and get him out of the house. I feel a bit nervous as the last lot I tried really upset me and put me right off.
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Originally posted by matthew55 View PostDifferent gravy and such a difference to the last lot. Right at Home gets a massive thumbs up from me. ππππ€xxDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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So do I. I'm going to try age UK first. Just heard from fronto temporal dementia organisation who have some suggestions but saying covid/Christmas holdups. I'm going to leave dementia UK for a while because I'm waiting to see what mnd/neurologist team say. To be honest I don't know what to do? Too many cooks or just sit back and nowt happens. Which seems more normal and I end up writing stroppy emails. I'm happy today. Goodness knows why. But hey make the most of it. Sunbathing this morning helped. π what happens if you don't like them? Can you imagine getting to say "you're fired!". Gosh. New one for me though I did get rid of last lot but got social services to do it for me. The power of it all. πwhen i can think of something profound i will update this.
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