February 4th for the installation! ππππππππππππππππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Not long to wait matthew55 ππ»Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
Splendid news! Did you do Voice Bank? My friends are asking if I am considering it.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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No, I didn't like my voice when I had it. π€πππ xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Going for the full Darth Vader then...Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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matthew55 - glad to hear the new voice is imminent. I hope you get on with it OK.
I've been told I'm too late for voice banking which has upset me. My voice was amazing, but hey ho. I'll probably end up doing darth vadar too, when the time comes (do you think I could ask a celebrity for their voice π€)Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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Snap I so want Denzel Washington ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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TinyLady Mnda paid Β£250 for my voice to be banked by speak unique app but I am not using it at present because itβs not clear enough and loud enough to be easily understood . I think itβs a fairly new app and trying to improve with feedback so I must try it again to see if I can use it, otherwise I feel very guilty that the Mnda kindly paid this not to be used. I bought speech assistant for Β£19 and use one of their female voices, which is louder and clearer. Would be nice to use one similar to my old voice though. Speak Unique can repair voices a bit. XxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Heather R - that's useful to know. I'll need to find out. Strangely until diagnosis confirmed that is on hold - but I have endless people coming about adaptations to my house. It seems some actions/ depts need more boxes ticked first... makes me still believe it might all be a mistake...Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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