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    Peg Issues

    I have had my peg six days and last night I noticed the fixer plate was cracked. I am not yet registered with Homeward and my dietician is due tomorrow. I have contacted her and she is trying to get someone out today. Meanwhile I have taped it up with blue dot tape. Has the happened to anyone else and any idea why? I made sure I slept on my back or side and am not heavy
    Diagnosed 3rd November 2021 Bulbar Onset

    #2
    The fixer is in two pieces. Are you sure it's cracked?
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #3
      matthew55

      Oh I didn't know that. It looks like there is a diagonal line across the corner. If that is normal then that's a relief. Should it be flat against the body as mine sticks out?
      Diagnosed 3rd November 2021 Bulbar Onset

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        #4
        Leave the width of a pound coin between it and skin.
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Originally posted by GillB View Post
          matthew55

          Oh I didn't know that. It looks like there is a diagonal line across the corner. If that is normal then that's a relief. Should it be flat against the body as mine sticks out?
          My fixer plate is one piece, triangular in shape. It is also a flexible plastic material. I can't see how it would be broken by you. It sticks out a bit if it is clamped close to the body and the tube has moved inwards as it often seems to do.
          Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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            #6
            Some tubes have 'elbow jointed' external fixators/discs/retainers, others just have flat discs, it depends on the brand, examples below:



            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #7
              Thanks all. Panic over and mine is the top one in the photo Ellie

              My dietician came this morning and all became clear. I truly believed I had cracked it myself.
              Diagnosed 3rd November 2021 Bulbar Onset

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                #8
                Don't worry we all have been where you are 😊😁😎😍xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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