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    #16
    Originally posted by matthew55 View Post
    My dietician is coming tomorrow.
    Great πŸ‘πŸ‘

    If there's anything else you want added to the list, now's the time 😘😘

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user    .
    ​
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      #17
      You could always put the naughty stuff in more acceptable bottles.
      when i can think of something profound i will update this.
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        #18
        Originally posted by denise View Post
        You could always put the naughty stuff in more acceptable bottles.
        Hahaha, genius!
        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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          #19
          Sneaky or what πŸ€£πŸ˜‚
          when i can think of something profound i will update this.
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            #20
            Originally posted by matthew55 View Post
            My dietician is coming tomorrow. She's my friend. πŸ‘πŸ˜Žβ€οΈπŸ˜ƒxx
            Was she able to sort the coffee issue outπŸ€”?
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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              #21
              My coffee is back!! My wonderful dietician sorted it out today. I'm so happy. πŸ˜πŸ‘πŸ˜πŸ˜Žxx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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                #22
                matthew55 good newsπŸ‘πŸ»β˜•
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
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                  #23
                  Common sense prevailed πŸ‘πŸ‘πŸ‘πŸ˜˜
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user                  .
                  ​
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