Artificial saliva

[PeterPan]

My excess saliva is now better managed, but a side effect is an extremely dry mouth at night. So uncomfortable that I’m getting woken up many times. I do have humility turned on on the BiPap ventilator.

Any suggestions? I bought some Oralieve spray. Well rated, but not effective for me! Thanks.

[matthew55]

I love, xyilmelts but you probably know that. 👍👏🤟🤗xx

[Ellie]

So uncomfortable that I’m getting woken up many times. I do have humility turned on on the BiPap ventilator.

Silly question Peter but have you tried turning up the humidifier?

Any air leaks from mask? Which mask do you wear? Are you a mouth breather? xx

[PeterPan]

matthew55

I love, xyilmelts but you probably know that. 👍👏🤟🤗xx

I remembered you mentioning something but couldn’t recall what it’s called. Thanks!

[PeterPan]

Ellie

Silly question Peter but have you tried turning up the humidifier?

Any air leaks from mask? Which mask do you wear? Are you a mouth breather? xx

Thanks, not silly questions 😀. Humidifier is on 4 out of 5. Have a Res Med Airfit F30. Very neat, sits under the nose. I’m a nose breather - no way you can open your mouth with this mask. No major leaks…

Xyilmelts on order as recommended by Matthew. Worth a try!

I’m wondering if it is sensible to take Glycopyrronium in the late evening. I was told to space 3 doses out as equally as possible over 24 hours. I may experiment with that.

[matthew55]

Glyco dries you up

[PeterPan]

Glyco dries you up

I really appreciate it during the day, but not at night 🤨

[Ellie]

Humidifier is on 4 out of 5. Have a Res Med Airfit F30. Very neat, sits under the nose.

And 5 ?? My mask is the same type, so I get the 'no leaks' aspect.

I was told to space 3 doses out as equally as possible over 24 hours.

To be blunt, that's rubbish 😏🙄 You shouldn't be stopped taking glyco when and how you need it - if you need to take a higher or lower dose at any time, you should be able to.

I take my last dose at 5pm so, by the time I start on NIV, its efficacy has diminished. I take my glyco 2x per day. xx

[PeterPan]

And 5 ?
To be blunt, that's rubbish 😏🙄

I love blunt 😀. Will do! (And will try 5)

[PeterPan]

matthew55 thanks for the recommendation of Xylimelts. A couple of issues getting them to stick, but slept for 6+ hours last night, which is a record!

[matthew55]

Same issues here my friend. They work during the day too.

[PeterPan]

Quick update. I was having a bit of trouble with the otherwise effective Xylimelts becoming detached and getting stuck in my throat.

Now using Oralieve Gel (not spray) at nights, which (for me) is even better. Longer lasting than Xylimelts, less goo in the mouth, and nothing to choke on. Recommended 😀

[matthew55]

Well I have been using xyilmelts for longer and that has never happened to me.

[PeterPan]

Well I have been using xyilmelts for longer and that has never happened to me.

It may be a particular batch I was unlucky with. My first experience was better. Anyway, we are both happy 😃

[Ellie]

I was having a bit of trouble with the otherwise effective Xylimelts becoming detached and getting stuck in my throat.

Gosh, that could have been dangerous Peter, happy to hear you found something which works xx