That's hard, Denise. Love and hugs x
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Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning! -
Thank you Heather –
1) to keep my hands moving I do various things when getting up from chairs to wangle my hand and helped by a pre-morning coffee 10 minute hand massage from my dearly beloved wife
2) to keep my ankles going, I use 1 of these floor-based cycling machines now and again
3) I work my hips and knees whenever I am standing up holding onto something and I have a few minutes to swing and sway
Anything to stop me seizing up any worse than I amWarmly
Andy
Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association
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