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    #31
    I had a message from my GP to say that he’s sent my prescription request to my designated pharmacy and to allow 48 hours for delivery xx
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

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      #32
      Originally posted by Ellie View Post
      Rosemary6NT To give you the reason why it's best to take Riluzole on an empty stomach, "high fat meals" can reduce the window of time for absorption by 20%, and can decrease the maximum amount of, and extent of, drug absorption by a whopping 45%.

      What constitutes a "high fat meal" isn't defined, but we should take from that data that it's best to take Riluzole on an empty stomach where possible or, if eating something light prevents nausea, keep food as low fat as possible. xx
      We’ll that’s interesting, thanks Ellie. I will change my routine accordingly. Perhaps if too much Riluzole is getting into my large intestine it could be playing havoc with my gut flora lol.
      Last edited by Rosemary6NT; 26 January 2022, 15:36.
      Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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        #33
        Originally posted by Rosemary6NT View Post
        Perhaps if too much Riluzole is getting into my large intestine it could be playing havoc with my gut flora lol.
        You can blame your flatulence on Riluzole for sure Rosemary, increased gas is a known side effect, though not very common - that's your 'get out of jail free' card 😉

        I don't know if you're into taking supplements but, if you are, then no harm in supporting that gut flora with kefir, live yoghurt and/or a good probiotic. xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #34
          Originally posted by Ellie View Post

          You can blame your flatulence on Riluzole for sure Rosemary, increased gas is a known side effect, though not very common - that's your 'get out of jail free' card 😉

          I don't know if you're into taking supplements but, if you are, then no harm in supporting that gut flora with kefir, live yoghurt and/or a good probiotic. xx
          That explains why I have become windy recently.
          It's all funny

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            #35
            Originally posted by Ellie View Post

            You can blame your flatulence on Riluzole for sure Rosemary, increased gas is a known side effect, though not very common - that's your 'get out of jail free' card 😉

            I don't know if you're into taking supplements but, if you are, then no harm in supporting that gut flora with kefir, live yoghurt and/or a good probiotic. xx
            I have regular order of kefir and live yoghurt in my shopping 🤗 xx
            Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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              #36
              Originally posted by keno View Post

              That explains why I have become windy recently.
              😄 glad I’m not the only one lol 😉
              Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                #37
                Originally posted by Rosemary6NT View Post
                I have regular order of kefir and live yoghurt in my shopping
                👍👍
                Mine go down the feeding tube xx
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  #38
                  I never questioned taking Riluzole. Started taking it Jan 2021. Bad headaches for a week or so and perhaps a bit tired. But after that fine. After my diagnosis a year ago I just went along with it

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                    #39
                    My liquid Riluzole has eventually arrived, what a relief xx
                    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                    I'm staying positive and taking each day as it comes.

                    Comment


                      #40
                      Lynne K

                      That's good Lynne.

                      Just wanted to send you best wishes for everything you've got on this week. xx
                      Husband diagnosed October 2020 with ALS. Started with foot-drop and weak grip/visible wasting in right hand. NIV and powerchair user.

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                        #41
                        Betty May thanks xx
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                        I'm staying positive and taking each day as it comes.

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