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Meeting my Palliative Care Team

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    #16
    Doug Carpenter feel guilty for being so selfish. Apologies x and I will grab the hug forthwith and run away with it haha

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      #17
      Need to stop thinking of myself right now. Sorry to all for being so flipping selfish in my words. Never been good at holding in emotions. All or nothing x

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        #18
        Hairbsb no need to apologise or guilty. You’ve every right to express your feelings xx

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          #19
          Just a reality check and that has made me very sad this evening

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            #20
            Originally posted by Piglet View Post
            Is that correct if your under a hospice, care packages if needed are free without being means tested.
            I think the criteria is having a DS1500 not being on a palliative care pathway.
            Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicates with eye gaze.

            Respiratory and blood gases still within normal range.

            No speech but sense of humour still fully intact.

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